Thursday, March 19, 2009

Meeting new friends is good

Last week when Ember got her labs drawn, everything was alright with the exception of her white blood cell count. It was on the low side so they asked for us to come back this week and get them drawn again. So, that is what we did yesterday. We also were asked to visit with a family who was here from Indiana for a transplant evaluation.

Their little boy has BA and needs a transplant as well. It was nice to get to share Ember's story and hopefully help them feel a little better about Transplant. I think that the first thing that I said to them was that Transplant is scary, but in the end it's worth it. Hopefully seeing Ember as healthy as she is now helped them feel better also. I am so glad that we got to meet them. I really want to be able to help others who are going through this as much as possible. I know that Liver Families and The Patterson's helped us get through the toughest time. Hopefully, we can do that for this family.

Also, I got Ember's labs back today and her WBC is still a little low. It is higher than it was last week, but not where it should be. This could be for any number of reasons. Most likely her medicine or she might have a touch of a viral thing going on. Her transplant coordinator said that when she talks with the Dr's to see what they want to do, she would let us know. For now we just need to keep her clean. Which means keep her away from all the sick people out there!

Also, this is kind of sad, but for the second time in a row she didn't cry when they stuck her to draw blood. She just sat there and watched them do it. Sad because she is 9 months old and getting stuck with a needle is old hat to her. However, I am grateful that she allows herself to let it be that easy. I wish I had that when I was little. Heck, I wish I had it now. I'm still not fond of them. She's happy though and I plan to keep her that way!

Monday, March 9, 2009

Much better!

Ember is feeling much better since the stuffy nose incident! She is still a little stuffy in the mornings, but nowhere near as bad as she was. YAY!

I know it has been awhile since I have done an update for her, but I feel like when things are going well, there isn't much to say other than, things are going well. She is happy, healthy, and enjoying life as far as I can tell. She is STILL not trying to crawl at all. She would rather stand. She has started to pull herself up into a standing position if she is sitting up. She hasn't quite figured out how to sit up from a laying down position yet though. Hopefully soon.

I do worry that she is behind, but I also think that she is 9 months old and she's had several surgeries so maybe I shouldn't worry about it. I know that she will do whatever she wants in her own time. Though, at this age on are when signs of autism begin to show up. I think that, for me anyway, that prospect is scarier than transplant. I mean, I know that transplant fixed her. With autism, there is no fix unless you have a million dollars to go to dr's every day and make your own therapy sessions, etc. She has no signs, that I know of, of autism, but I worry. That's what I do.

Anyway, in other news, she is saying "dadda" all the time right now. EVERYTHING is dadda. I may be jading myself, but I don't consider it a true word until she can associate it. So, I am hoping that "mamma" is the first word she associates even though she isn't saying it yet. She says "Ma" or "Ba" every once in awhile, but right now "dadda" is the favorite.

She gets her labs drawn Wednesday and then has her 9 month check up at the pediatrician this Friday. So, we will see what they say other than the fact that she is perfect. Which, we already knew.

Also, we are entering her into a Most Beautiful Baby contest that is put on by a local photographer. The hard part is trying to pick the picture! It's SO hard! I will update you on what happens with that as well. :)