First of all, I know that I am such a bad Liver mommy as far as the updates go! I hadn't realized that the last update was in December! Ember has been doing relatively well since the last update. We did have an overnight stay a few months ago at Children's for about of pneumonia. Even though we hadn't been on the floor with her since she was 8 months old, it was still familiar and it was like we were visiting our long lost home.
Well, Wednesday night we visited our home away from home again. Ember came home from preschool and had some blood in her stool. She also had diarrhea with it. We called the GI Dr. on call and when I talked to him, I had originally thought that it was blood in her urine so he told us that we could wait until the morning and take her to see the pediatrician. About 30 minutes later, she went again and I knew it was stool. So, I made the decision to take her to the ER. My mom rode with us and dad took Autumn. Ember was already SO very tired on the way up to the ER, but she fought her sleep. Of course, once we arrived at the ER there was no way she was going to calm down and go to sleep. Matt met us there and after we checked her in we noticed that the ER was very crowded.
Once we sat down we were told by some people who were there that they had been there for two hours already. Ember went to the bathroom several times when we were in the ER waiting room. Then we were told that the wait was up to 4 hours! Needless to say it was not a happy wait for us, but she needed to be checked out. We got back into an ER room at 12:30am. We had arrived at the ER at 8:15pm! They ran labs and wanted for her to give them a sample. We tried to get her to go again, but by then she was exhausted and of course she didn't give them one. We waited for her labs to come back to make sure all of her numbers were good. They finally told us that they were going to keep her at around 2:30am. Ember had fallen asleep on daddy and I was sitting in the chair falling sleep too. They let us sleep actually until her room was ready at 4:30am. So, we got to her room, got her in bed with me and we all promptly fell asleep.
Of course when you stay at Children's, you get to see a lot of Dr's! So, around 6ish they started coming in. Most of the time I was awake, but sometimes I am sure they thought I was talking crazy. Ember actually did really well with all of the blood pressure, listening, and temperature taking they did. She also got the hang of pushing her IV pole around her room by herself pretty quickly. They pumped her full of fluids and Thursday all day she had no more blood in her stool. So, we took naps, ate badly, and watched a lot of sprout while she wanted to be held a lot. She never acted like she felt bad, but I am glad they decided to keep her just in case. We did get to come home Friday which was good. Autumn stayed with Grammy J while we were in the hospital and needless to say I missed her. Ember did too. She kept asking about her sissy and if she would see her when she went home.
Since we have been home she has been playing and running around like her normal self. She has been wanting to play outside, but the lovely snow we just got on Saturday has kind of dampened that. Hopefully spring will hurry up and bring a few warm days so my little ones can get some good park time in! Ember loves outside time and I can't wait to see how her and Autumn play together at the playground.
We are going to get her labs done again later this week. Hopefully there will be nothing more to report. I will try to give you more updates! I am sure there will be plenty once the weather warms up! Oh! And as soon as she starts her dancing and tumbling class! Can't wait!
Monday, March 28, 2011
Thursday, December 16, 2010
2 years and counting...
I am seriously slacking! I missed posting about an very important event in Ember's life. Her two year transplant anniversary. So, here is a catch up on that as well as a few other things that have been going on since then.
November 18, 2010 marked 2 years since Ember received her life saving gift. It was a very special day for all of us. I silently cried that day knowing how truly blessed we are. I cried because I want to much for her to know her donor family, but I also cried for them knowing how hard it must be for them this time of year. As I have posted earlier, they moved without leaving a forwarding address with the organ donation agency so we have no way of contacting them. However, I do think that I know who is her donor and was very tempted this year to try to contact them. I did decide to wait in the hopes that one day we would hear from them. I also decided that contacting them on my own would be a good idea at another time in the year. At this time it might just be too hard on them. Also, I keep thinking to myself, "What if I'm wrong?". I would hate to bring more pain to a family than they already have.
Last year we decided that every year for Ember's anniversary we would get together as a family and go out to a restaurant to celebrate. We aren't going to do presents or anything like that since, lord knows, the child has more toys and things than she already knows what to do with. So, this year my mom made green colored white chocolate lollipops that were in the shape of an awareness ribbon for everyone who came to dinner. They were yummy! Ember thoroughly enjoyed hers. I made Ember a cake that was in the shape of an awareness ribbon as well. Once she saw that, eating anything else went out the window. The child has the biggest sweet tooth! And Great Grandma Lola just might have gotten her a present anyway. It was a cute little snow globe. Ember loves it. She is still carrying it around the house and asking me to shake it up for her on a daily basis just about. It was nice to visit with family and celebrate how blessed we have been.
Since then, Ember has help us celebrate her sister's 1 year birthday. (6 days after her anniversary) She is also really starting to get into this whole Christmas thing. She loves all of the decorations. She even helped Mommy, Grammy J, and Bob decorate the tree this year. Amazingly it has remained in tact. Ember even guards the tree from her sister right now. I sometimes hear her saying "Almond! No, No" and then she claps her hands twice. Yes, she calls her sister Almond. I guess Autumn is just too hard for her to say. It makes me smile. :) She is very interested in the neighbors blow up snowman so we were gifted a blow up Santa for her to look at as well. She keeps asking us "No pop?" which means that she is asking whether the Santa will pop or not. We keep repeating "No, Santa won't pop" like broken records.
Unfortunately, a week ago we went to the ER with her because she developed some alarming symptoms in the span of about two hours. She had some issues with drainage from her eyes and in a matter of two hours she developed a fever of 101.9, a horrible cough, and she was extremely pale. While I called the Dr's exchange she sat on Maw Maw's lap and complained that her eyes were hurting. As I was on the phone with the Nurse from the exchange, she told Maw Maw that her head was hurting also. So, the nurse told us just to take her to the ER. So, at 9p.m. at night we were heading to the ER. When we got there, she was still running a horrible fever so they had us take her jammies off of her. They did blood work, a chest X-ray, a nasal swab (which made her OH so happy - did you sense the sarcasm?) and looked in her ears. They told us that her ears were fine and that her chest x-ray and blood work were showing what appeared to be a virus. We luckily got to come home. Over the weekend the cough got worse, but the eyes and fevers got better. However, she lovingly shared her virus with her sister.
After going to see the pediatrician with both girls on Tuesday it seems that Ember now has an inner ear infection as well. Her first, and only I hope, ever. Her sister has the virus, but not as bad. Antibiotics for Ember and eye drops for baby sissy. Now, mommy and daddy have it too. I know that I am always telling her to share, but this is one thing she could have kept to herself.
Hopefully we are all on the mend and will be good by this weekend. I want to try to take them to see Santa. Last time we tried to get pictures, it didn't work out so well. We will see what happens this time!
November 18, 2010 marked 2 years since Ember received her life saving gift. It was a very special day for all of us. I silently cried that day knowing how truly blessed we are. I cried because I want to much for her to know her donor family, but I also cried for them knowing how hard it must be for them this time of year. As I have posted earlier, they moved without leaving a forwarding address with the organ donation agency so we have no way of contacting them. However, I do think that I know who is her donor and was very tempted this year to try to contact them. I did decide to wait in the hopes that one day we would hear from them. I also decided that contacting them on my own would be a good idea at another time in the year. At this time it might just be too hard on them. Also, I keep thinking to myself, "What if I'm wrong?". I would hate to bring more pain to a family than they already have.
Last year we decided that every year for Ember's anniversary we would get together as a family and go out to a restaurant to celebrate. We aren't going to do presents or anything like that since, lord knows, the child has more toys and things than she already knows what to do with. So, this year my mom made green colored white chocolate lollipops that were in the shape of an awareness ribbon for everyone who came to dinner. They were yummy! Ember thoroughly enjoyed hers. I made Ember a cake that was in the shape of an awareness ribbon as well. Once she saw that, eating anything else went out the window. The child has the biggest sweet tooth! And Great Grandma Lola just might have gotten her a present anyway. It was a cute little snow globe. Ember loves it. She is still carrying it around the house and asking me to shake it up for her on a daily basis just about. It was nice to visit with family and celebrate how blessed we have been.
Since then, Ember has help us celebrate her sister's 1 year birthday. (6 days after her anniversary) She is also really starting to get into this whole Christmas thing. She loves all of the decorations. She even helped Mommy, Grammy J, and Bob decorate the tree this year. Amazingly it has remained in tact. Ember even guards the tree from her sister right now. I sometimes hear her saying "Almond! No, No" and then she claps her hands twice. Yes, she calls her sister Almond. I guess Autumn is just too hard for her to say. It makes me smile. :) She is very interested in the neighbors blow up snowman so we were gifted a blow up Santa for her to look at as well. She keeps asking us "No pop?" which means that she is asking whether the Santa will pop or not. We keep repeating "No, Santa won't pop" like broken records.
Unfortunately, a week ago we went to the ER with her because she developed some alarming symptoms in the span of about two hours. She had some issues with drainage from her eyes and in a matter of two hours she developed a fever of 101.9, a horrible cough, and she was extremely pale. While I called the Dr's exchange she sat on Maw Maw's lap and complained that her eyes were hurting. As I was on the phone with the Nurse from the exchange, she told Maw Maw that her head was hurting also. So, the nurse told us just to take her to the ER. So, at 9p.m. at night we were heading to the ER. When we got there, she was still running a horrible fever so they had us take her jammies off of her. They did blood work, a chest X-ray, a nasal swab (which made her OH so happy - did you sense the sarcasm?) and looked in her ears. They told us that her ears were fine and that her chest x-ray and blood work were showing what appeared to be a virus. We luckily got to come home. Over the weekend the cough got worse, but the eyes and fevers got better. However, she lovingly shared her virus with her sister.
After going to see the pediatrician with both girls on Tuesday it seems that Ember now has an inner ear infection as well. Her first, and only I hope, ever. Her sister has the virus, but not as bad. Antibiotics for Ember and eye drops for baby sissy. Now, mommy and daddy have it too. I know that I am always telling her to share, but this is one thing she could have kept to herself.
Hopefully we are all on the mend and will be good by this weekend. I want to try to take them to see Santa. Last time we tried to get pictures, it didn't work out so well. We will see what happens this time!
Friday, October 22, 2010
Our lives have changed....
For the better. Two years ago today Ember was placed on the transplant list. Two years ago today we started what could have been a very long wait for her life saving gift. Two years ago today we knew that our baby was sick, but we really had no idea how severe it really was. Yes, she was being placed on the transplant, but it wasn't final for us until she was actually transplanted. It was always one of those hopes that she would magically get well enough to be removed from the list. It happens, but not often.
Since that day, our lives have changed in the most incredible ways. We have had to opportunity to watch our little girl live. And by live, I mean thrive. We have had the opportunity to meet several families affected by BA and it has been amazing. We have had the opportunity to meet some of the best nurses, surgeons, PCA's, and volunteers in the world. I can honestly say that without any of them, we wouldn't have made it through to today. They helped keep us sane while we tried to help keep others in our position sane. Since that day, we have also felt the loss of several beautiful liver babies. Even though we never met them, we felt the loss all the same. I can't even begin to count the silent tears I have cried for each and ever liver baby that we have lost or that is going through a rough time. I hope and pray that every liver baby can be as blessed as Ember has been. She has had relatively few complications since her transplant, and most of those complications have been unrelated.
She has the peanut allergy and she is a very rashy baby. We worry a lot about the rashes because they seem to just come up out of the blue. However, if that is all we have to deal with, then I would say that we are very blessed. Two years ago, I would watch a very tiny 4 1/2 month old yellow baby sleep a lot. I would hold her wondering when she would crawl or even walk and what our future held. If I had only known. Many liver moms told me that the other side of transplant was amazing, but it just didn't click until I was there. Within days she was a pink baby! As she grew she became healthier and more active. She never did crawl by the way. She just went straight to walking! And now, you just can't stop her!
Two years ago today we learned the true meaning of support. I can only hope that we can provide the same type of support to others as time goes on. And hopefully, one day, we won't need to because they will find a cure for BA. Thank you to everyone who supported us then, continue to support us now, and will support us in the future. It means more than we can say and we love you for it.
Since that day, our lives have changed in the most incredible ways. We have had to opportunity to watch our little girl live. And by live, I mean thrive. We have had the opportunity to meet several families affected by BA and it has been amazing. We have had the opportunity to meet some of the best nurses, surgeons, PCA's, and volunteers in the world. I can honestly say that without any of them, we wouldn't have made it through to today. They helped keep us sane while we tried to help keep others in our position sane. Since that day, we have also felt the loss of several beautiful liver babies. Even though we never met them, we felt the loss all the same. I can't even begin to count the silent tears I have cried for each and ever liver baby that we have lost or that is going through a rough time. I hope and pray that every liver baby can be as blessed as Ember has been. She has had relatively few complications since her transplant, and most of those complications have been unrelated.
She has the peanut allergy and she is a very rashy baby. We worry a lot about the rashes because they seem to just come up out of the blue. However, if that is all we have to deal with, then I would say that we are very blessed. Two years ago, I would watch a very tiny 4 1/2 month old yellow baby sleep a lot. I would hold her wondering when she would crawl or even walk and what our future held. If I had only known. Many liver moms told me that the other side of transplant was amazing, but it just didn't click until I was there. Within days she was a pink baby! As she grew she became healthier and more active. She never did crawl by the way. She just went straight to walking! And now, you just can't stop her!
Two years ago today we learned the true meaning of support. I can only hope that we can provide the same type of support to others as time goes on. And hopefully, one day, we won't need to because they will find a cure for BA. Thank you to everyone who supported us then, continue to support us now, and will support us in the future. It means more than we can say and we love you for it.
Sunday, July 25, 2010
Enjoying life
It has been entirely too long since I have made an update on Ember. I really think that it has been out of mommy being lazy and well, there has just been life happening. Nothing really liver related. Well, that's not entirely true. We are still doing monthly labs. They continue to come back normal every single time. We are truly blessed. Also, on July 9th, Ember had what is called an IGFR test. The way it was explained to us is that it is a test that will help determine her kidney function. The reason she had this test is because her medicine can damage her kidneys. Her test came back completely fine. We have no worries. Very much a relief.
While we were getting her test done, I noticed a Dr. that looked very familiar to me. I didn't mean to interrupt him, but I was SO excited to see him. It was Dr. P. The Dr. that helped to diagnose her with BA almost 2 years ago now. It was such a treat for me to get to introduce her to him as the thriving 2 year old she is now. I don't think that he has seen her since her Kasai procedure. He was always so sweet with her. He would come in and just talk to her and caress her hair as she was sleeping or just lying in bed. I really felt like he cared for her as if she was his own. She was just a tiny 11 week old baby then and now she is a active toddler. I wrote him a quick thank-you note with her website address on it and gave it to him before we left. We found out that after that week, he was moving. Children's lost a great Dr., but another hospital has gained him and I hope they know how lucky they are.
Other than that, we have just been having a normal life. It's funny how I always thought that I would never be able to say that about her. I was SO wrong. Ember is absolutely in her 2's. She throws tantrums, tells us "No, no, no" A LOT, and loves on her sister more than I could ever ask. We also had a photo shoot with some other BA families since I have updated last time. It was so great to get to meet others that were pre and post transplant. She was her usual self. There is even a picture where she is holding her hands out to hold a small baby named Willow. We kept telling her that she couldn't hold the baby! Ember didn't care, she was determined to hold her. She settled for touching her and saying "Awww Baby" a lot.
She has been incredibly understanding with her sister as well. Four weeks ago I fell with her and ended up breaking her leg. She has been in a cast of one type or another since. Ember has had to deal with mommy showing a bit more attention to sissy because of that and all in all she has been great. There have been moments where she earned herself time out, but I think that is the 2 year old in her. Tomorrow we go to get the cast off and I am sure Ember is in for a reality check. I truly think that her sister is going to give her a run for her money!
On a sad note, we did learn that her donor's family moved and left no forwarding address with the Organ Procurement Agency. It was a very sad day for me. I had envisioned so many times getting to introduce Ember to the family. Getting to let them see they type of little girl she is growing into. The compassion she feels, at 2 years old, for others. I knew that it was always a possibility that we would never meet them, but I hoped that wasn't going to be the case for us. I have decided that we are going to continue to write letter's to her Angel, but we will save them just in case we end up hearing from them. And if not, maybe they will help someone else find the words to write to their donor family.
I hate to leave this update on a sad note, so here's a cute thought. Ember's hair is now just long enough to put into pigtails! It is the most adorable thing I have seen yet!!!! I will try to post pics soon.
While we were getting her test done, I noticed a Dr. that looked very familiar to me. I didn't mean to interrupt him, but I was SO excited to see him. It was Dr. P. The Dr. that helped to diagnose her with BA almost 2 years ago now. It was such a treat for me to get to introduce her to him as the thriving 2 year old she is now. I don't think that he has seen her since her Kasai procedure. He was always so sweet with her. He would come in and just talk to her and caress her hair as she was sleeping or just lying in bed. I really felt like he cared for her as if she was his own. She was just a tiny 11 week old baby then and now she is a active toddler. I wrote him a quick thank-you note with her website address on it and gave it to him before we left. We found out that after that week, he was moving. Children's lost a great Dr., but another hospital has gained him and I hope they know how lucky they are.
Other than that, we have just been having a normal life. It's funny how I always thought that I would never be able to say that about her. I was SO wrong. Ember is absolutely in her 2's. She throws tantrums, tells us "No, no, no" A LOT, and loves on her sister more than I could ever ask. We also had a photo shoot with some other BA families since I have updated last time. It was so great to get to meet others that were pre and post transplant. She was her usual self. There is even a picture where she is holding her hands out to hold a small baby named Willow. We kept telling her that she couldn't hold the baby! Ember didn't care, she was determined to hold her. She settled for touching her and saying "Awww Baby" a lot.
She has been incredibly understanding with her sister as well. Four weeks ago I fell with her and ended up breaking her leg. She has been in a cast of one type or another since. Ember has had to deal with mommy showing a bit more attention to sissy because of that and all in all she has been great. There have been moments where she earned herself time out, but I think that is the 2 year old in her. Tomorrow we go to get the cast off and I am sure Ember is in for a reality check. I truly think that her sister is going to give her a run for her money!
On a sad note, we did learn that her donor's family moved and left no forwarding address with the Organ Procurement Agency. It was a very sad day for me. I had envisioned so many times getting to introduce Ember to the family. Getting to let them see they type of little girl she is growing into. The compassion she feels, at 2 years old, for others. I knew that it was always a possibility that we would never meet them, but I hoped that wasn't going to be the case for us. I have decided that we are going to continue to write letter's to her Angel, but we will save them just in case we end up hearing from them. And if not, maybe they will help someone else find the words to write to their donor family.
I hate to leave this update on a sad note, so here's a cute thought. Ember's hair is now just long enough to put into pigtails! It is the most adorable thing I have seen yet!!!! I will try to post pics soon.
Sunday, May 30, 2010
2 Years Old
Our little Monkey is officially 2 years old today! I can't believe she is 2. It doesn't really seem like we have had her in our lives for that long. I know that in the grand scheme of things 2 years is nothing, but it is a lot for us. Especially considering there was a time where we might not have made it to this point. Here is a tiny look back at the past two years.
This was taken right after we got to our room when she was born. I had a c-section so I was not tired in the least! So happy to see her finally here.
This is Ember with her Great Grandma at almost 2 months. This is one of the only pictures I have of them together. By the time Ember was born Grandma was suffering from the horrible effects of Dementia and Alzheimer's. She may not have remembered much, but she always asked where Ember was when we went to see her. She loved Ember so much and I am so happy that they got to meet. Ember is so much like her Great Grandma that it is a little scary. RIP Grandma. We love you.
This is two days after Ember's first surgery. She was just 3 1/2 months old. Looking back, I now know how yellow she really was. We were in the hospital for a total of 16 days after that first surgery. This was taken right after feeding her a measly 2 ounces. It was one of the few times she didn't throw it back up all over me.
This was taken on 11/18/08. The hardest day of my life so far. This was in the waiting room just before handing my baby over to a team of surgeons for her liver transplant. She was still all smiles even though she hadn't eaten anything for awhile. She went through a surgery that was about 6 1/2 hours. That day her life was saved due to someones selfless act. We love and thank her donor angel every day.
This is one of my most favorite pictures of her. This is the first time she wore her snowsuit. We were on our way to a clinic visit and it was extremely cold. I was excited to get her in it. She was 6 months old here. Only about 20 days after her transplant.
Skipping ahead just slightly, this picture is another one of my favorites. This is a few days before she turned 1. She was sitting at the front door just watching the world go by.
Ember at 16 months playing "Soooo Big". She was also trying to use the box that is right in front of her to stand on so she could reach the tray of her highchair.
This is just a few days after we brought her little sister home. She is so in love with her. This was at 17 1/2 months. She still always wants to hold her. It is too cute.
This is our little Monkey today. This was taken just a few days ago. The dress she is wearing is actually a dress that her Great-Grandma made. She made it for me when I was Ember's age. I can't believe that she has come so far. Today she is a normal, happy, healthy toddler. To look at her you would never know what she has been through. Well, aside from when she lifts up her shirt and shows off her zombie fighting scar (at least that is what the huz says he is going to tell her when she gets older). Happy Birthday my little Monkey. I love you so very much. I am so very happy that you chose us to be your family. You have changed our lives for the better. We can't imagine life without you in it.
Thursday, March 11, 2010
Allergy Testing
Tuesday we took Ember to the allergist for allergy testing. In November she broke out in hives around her mouth after eating something. We had assumed that it was from the meringue off of a pie. So, we made the appointment for March and waited.
When we got to the allergist, we told her what happened and that we suspected an allergy to raw eggs. She said that we could test for household allergies (dogs, cats, dust, etc), seasonal allergens, eggs, and nuts. The testing wasn't at all what I expected. I thought that there were going to do needles with injections just under her skin. Instead they did these little 6 pronged trays and placed them on her back. I think the worst part for Ember, other than just being at a Dr's office, was having to be held down while they applied 4 of the trays to her back. Then we waited for 15 minutes.
After the 15 minutes, the nurse came back in and looked at Embers back, and then measured the places that seemed to be inflamed. The first spot was Histamine. It is basically their control spot to make sure that the test is working. It was a 5X7 red bump on her back. The only other spot that showed up was a 5X5 spot on her back. And it just so happened to be........if you guessed eggs, you are just as wrong as we were......Peanuts! I am SO glad that we decided to do this testing. Ember hasn't had any nuts yet since her transplant nurse mentioned to me that kids aren't supposed to have them until they are 2 now. I had told Matt that once the allergy testing was done, we might try introducing some peanut butter since she is only a few months away from turning 2. (Can you believe it?! My little monkey is going to be 2?!)
Matt was SO disappointed. He was so looking forward to sharing peanut butter and jelly sandwiches with her. I told him that maybe they still could depending on if she grows out of the allergy or not. When we take her to get her normal liver labs done, they are going to draw extra blood for the allergist. She told us that it would give them a number to base how severe her allergy is and then they could track it over time. We are going to have to go back to see then in about 3 months. They gave us some information on reading labels and what she could and couldn't have. They also gave us a prescription for some Epi-Pens. Kind of scary, but I know that we won't have to use them if we just keep an eye on her.
So, for now we wait to see what the results of her blood work is. I also really need to bet my rear in gear and order her a medic alert bracelet now. She technically should already have one, but now it's even more of a necessity.
When we got to the allergist, we told her what happened and that we suspected an allergy to raw eggs. She said that we could test for household allergies (dogs, cats, dust, etc), seasonal allergens, eggs, and nuts. The testing wasn't at all what I expected. I thought that there were going to do needles with injections just under her skin. Instead they did these little 6 pronged trays and placed them on her back. I think the worst part for Ember, other than just being at a Dr's office, was having to be held down while they applied 4 of the trays to her back. Then we waited for 15 minutes.
After the 15 minutes, the nurse came back in and looked at Embers back, and then measured the places that seemed to be inflamed. The first spot was Histamine. It is basically their control spot to make sure that the test is working. It was a 5X7 red bump on her back. The only other spot that showed up was a 5X5 spot on her back. And it just so happened to be........if you guessed eggs, you are just as wrong as we were......Peanuts! I am SO glad that we decided to do this testing. Ember hasn't had any nuts yet since her transplant nurse mentioned to me that kids aren't supposed to have them until they are 2 now. I had told Matt that once the allergy testing was done, we might try introducing some peanut butter since she is only a few months away from turning 2. (Can you believe it?! My little monkey is going to be 2?!)
Matt was SO disappointed. He was so looking forward to sharing peanut butter and jelly sandwiches with her. I told him that maybe they still could depending on if she grows out of the allergy or not. When we take her to get her normal liver labs done, they are going to draw extra blood for the allergist. She told us that it would give them a number to base how severe her allergy is and then they could track it over time. We are going to have to go back to see then in about 3 months. They gave us some information on reading labels and what she could and couldn't have. They also gave us a prescription for some Epi-Pens. Kind of scary, but I know that we won't have to use them if we just keep an eye on her.
So, for now we wait to see what the results of her blood work is. I also really need to bet my rear in gear and order her a medic alert bracelet now. She technically should already have one, but now it's even more of a necessity.
Thursday, February 25, 2010
Liver Families 4th Birthday
The above montage is from a board that I joined right when Ember was diagnosed with Biliary Atresia. Liver Families has helped me through SO much. I am so blessed to have such great internet friends as the people on Liver Families. I am sad that we share the common bong od liver disease, but I am glad that we have a place to share stories. Please sign up to be an Organ Donor today.
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